OneNeurology Episode 23 – From Lived Experience to Lasting Change: Building Better Neurology Together
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As the European Federation of Neurological Associations (EFNA) celebrates 25 years of advocacy, Sam Pauly is joined by Dr. Orla Galvin, Executive Director of EFNA, which serves as the Secretariat for the OneNeurology partnership. Together, they explore how advocacy for neurological conditions has evolved, why collaboration is essential to making neurology a global health priority, and how early and meaningful patient involvement is helping shape better research, policy and care. The episode also features Astri Arnesen, who shares how persistence, partnership and lived experience—including her own family’s experience of Huntington’s disease—have helped transform advocacy for people living with neurological conditions.
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Dr. Orla Galvin
Executive Director, European Federation of Neurological Associations (EFNA)
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Astri Arnesen
President, European Federation of Neurological Associations (EFNA)
and President & CEO European Huntington Association (EHA)
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